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Directors of Health Promotion and Education (DHPE)
LEAP: Lupus Education and Awareness for
Patients, Professionals and Providers

 

 

 

 

Lupus is a chronic, autoimmune disease that can damage any part of the body (skin, joints, and/or organs). This means that anyone who develops lupus will have lupus for the rest of their life. An accurate diagnosis of lupus can take up to six years.

 

Current research shows that at least 1.5 million Americans have lupus. More than 16,000 new cases of lupus are reported annually across the country. Women of color are two to three times more likely to develop lupus than Caucasians.

 

The purpose of the DHPE Lupus Health Education Program entitled LEAP is to reduce lupus related health disparities among racial and ethnic minority populations disproportionately affected by this disease by conducting a national lupus education initiative.

 

DHPE LEAP Goals:

  • To emphasize lupus as a chronic disease;

  • To engage primary care providers and health educators to learn the signs and symptoms of lupus to assist with reducing the diagnosis timeframe of lupus; and

  • To increase the discussion of lupus among the targeted audience of women of color, especially African American women of child-bearing age.

 

DHPE LEAP National Program Objectives:

  • To promote culturally and linguistically appropriate lupus training opportunities to health professionals, providers and students with assistance from The Lupus Initiative of American College of Rheumatology and WebMD [CMEs and CHES offered]
  • To implement a local rural health community-level lupus awareness and education program at Robeson County Health Department, North Carolina, which will include optimal health gatherings for patients and awareness events at local churches
  • To award mini-grants to community and faith-based groups with ties to state-level Offices of Minority Health to increase lupus awareness and education win minority communities
  • To create and implement sustainable and highly effective partnerships to increase exposure to lupus education and access to resources for patients, such as with the National Medical Association, the Ohio Commission on Minority Health, the National Association of State Offices of Minority Health, the Consortium of African American Public Health Programs and others.


DHPE LEAP Mini-Grantees
:

 

DHPE LEAP Webinar Recordings:


Directors of Health Promotion and Education (DHPE) LEAP: Lupus Education and Awareness for Patients, Professionals and Providers sponsored the following webinars in 2016. DHPE is a designated provider of continuing education contact hours (CECH) in health education by the National Commission for Health Education Credentialing, Inc (NCHEC).

Each webinar is designated for Certified Health Education Specialists (CHES) and/or Master Certified Health Education Specialists (MCHES) to receive up to 1 total Category I continuing education contact hours.  To receive CECH for reviewing the pre-recorded webinar please complete the following steps:

1. Review the entire webinar recording by accessing the recording via the URL provided in the webinar description section.

2. Complete a webinar assessment. A web link to each webinar assessment is available in each webinar description section. 

3. Send an e-mail to DHPE’s Assistant Director of Training and E-Learning at lhaynes-smith@dhpe.org with the following information:

a.       Full Name

b.      CHES/MCHES ID number

c.       Date you reviewed the webinar and completed the survey

Please Note: DHPE reports health education CECH requests to NCHEC on a quarterly basis. Your CECH will not appear until the end of the quarter of when you applied for credits. Certificates of completion are available upon request.

 

Webinar Title: Lupus is a Chronic Disease: Know the Signs and Symptoms

Webinar Date: February 12, 2016

Presenter: Dr. Gwenesta B. Melton, Assistant Consulting Professor, Duke University Medical Center, Department of Rheumatology; Assistant Professor, Campbell University School of Osteopathic Medicine

Learning Objectives:

·         Recognize initial signs and symptoms of Lupus.

·         Know what initial screening tests can help confirm diagnosis.

·         Understand significance of early diagnosis.

Please complete this webinar assessment after viewing the recording if requesting CECH.

 

Webinar Title: Lupus and Pregnancy

Webinar Date: March 16, 2016

Presenter: Yolanda Lawson, M.D., P.A., F.A.C.O.G, Owner, Associate Attending, Madewell OBGyn, Madewell Woman, Baylor Scott and White University, Medical Center

Learning Objectives:

·         To explain the relationship between lupus and pregnancy.

·         To discuss how the signs and symptoms of lupus present in pregnant women.

·         To explore how support systems, including family, friends and community, can enhance the quality of life of pregnant lupus patients.

Please complete this webinar assessment after viewing the recording if requesting CECH.

 

Webinar Title: Lupus and Nutrition

Webinar Date: March 30, 2016

Presenters: Dr. Linda Thompson, LN, Assistant Professor, Howard University in the Department of Nutritional Sciences.
Dr. Shirley Hill, Wellness Administrator, Sakal Global Nation

Learning Objectives:

·         Explain the impact food has on autoimmune diseases, such as lupus;

·         Describe which foods lupus patients should avoid and why; as well as

·         Discuss how nutritious diets can improve the quality of life of lupus patients.

Please complete this webinar assessment after viewing the recording if requesting CECH.

 

Webinar title: Diversifying Lupus Clinical Trials

Webinar Date: April 5, 2016

Presenters: Dr. Priscilla Pemu, MD, MSCR, FACP, Associate Professor of Medicine, New York Presbyterian, Columbia University, Medical Center
Dr. Anca Askanase, MD, MPH, Director of Clinical Trials, Morehouse School of, Medicine Clinical Research

Learning Objectives:

·         By the end of the webinar, participants will be able to identify historical barriers to minority participation in clinical trials;

·         Discuss culturally appropriate strategies for recruiting minorities into clinical trials;

·         Locate current lupus clinical trials; and

·         Explain the importance of women of color participating in lupus clinical trials.

Please complete this webinar assessment after viewing the recording if requesting CECH.

 

Webinar Title: Pediatric and Adolescent Lupus

Date: Wednesday, April 27, 2016 – Every Kid Healthy Week

Presenter: L. Nandini Moorthy, MD MS FAAP, Associate Professor of Pediatrics, Chief, Pediatric Rheumatology Services at RWJUH- BMSCH, Rutgers University/Robert Wood Johnson Medical School, Department of Pediatrics, Child Health Institute of New Jersey

Learning Objectives:

·         Understand the presentation of severe, moderate and mild lupus in children and adolescents

·         Understand the various tests used for evaluating children and adolescents with lupus

·         Understand the racial/ethnic differences in children and adolescents with lupus

·         Discuss the importance of early diagnosis of lupus in children and adolescents

Please complete this webinar assessment after viewing the recording if requesting CECH.

 

Webinar Title: Patient Perspective: Living with Lupus

Date: Tuesday, May 10, 2016 – National Women’s Health Week / Lupus Awareness Month

Presenter: Hetlena Johnson, Chief Volunteer Officer, Lupus Foundation of America South Carolina, Community Volunteer Partner

Learning Objectives:

·         To provide a patient perspective on living with lupus

·         To discuss how lupus affects the quality of life of someone diagnosed

·         To explore possible solutions to how a lupus patient can live successfully while living with lupus

Please complete this webinar assessment after viewing the recording if requesting CECH.

 

Webinar Title: Men and Lupus

Date: Wednesday, June 15, 2016 – National Men’s Health Week

Presenter: Irene Blanco, MD, MS, Associate Professor of Clinical Medicine, Associate Dean of Diversity Enhancement, Rheumatology Fellowship Program Director, Albert Einstein College of Medicine

Learning Objectives:

·         To explain how lupus presents in men in comparison to women

·         To discuss racial/ethnic differences in men with lupus

·         To explore the importance of early diagnosis of lupus in men

Please complete this webinar assessment after viewing the recording if requesting CECH.

 

Webinar Title: Conducting Effective Lupus Support Groups – Virtually or Face-to-Face

Date: Wednesday, October 5, 2016

Presenter: Hetlena Johnson, Chief Volunteer Officer, Lupus Foundation of America South Carolina Community Volunteer Partner

Learning Objectives:

·         To provide overview of support group based on a lupus patient perspective

·         To discuss how social support impacts the quality of life of someone diagnosed with lupus

·         To discuss best practices of conducting support groups for lupus patients

·         To explore the pros and cons of virtual support groups for lupus patients

·         To provide resources for implementing effective lupus support groups

Please complete this webinar assessment after viewing the recording if requesting CECH.

 

Webinar Title: Mental Health and Lupus

Date: November 16, 2016

Presenter: Priscilla J. Murphy, LPCMH, MEd, NCC, BSN, RN, President, Nylex Educational & Counseling Services Inc.

Learning Objectives:

·         To discuss the correlation between a lupus diagnosis and mental health

·         To learn health education practices to enhance the mental health of lupus patients

·         To explore mental health resources for lupus patients

·         To explain how health educators and primary care providers may support the mental health of lupus patients

Please complete this webinar assessment after viewing the recording if requesting CECH.


The DHPE LEAP Program is funded through the National Health Education Lupus Program of the Office of Minority Health, US Department of Health and Human Services. For more information contact LEAP Project Director Steven Owens, MD, MPH at
sowens@dhpe.org or LEAP Project Manager Thometta Cozart, MS, MPH, CHES, CPH at tcozart@dhpe.org.

 

 

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